PASDA was started when a group of AOSD sufferers met online and realised we had all suffered from the same lack of meaningful and relevant information when we were diagnosed. AOSD is a very rare condition, and this lack of information only increases the sense of isolation and frustration. So we wanted to pull together everyone's experiences so that fellow patients can get the information they need to make the right choice for their own healthcare. We are not a research body, we are not a charity, we are simply an online forum of patients that you can use as much or as little as you want. Feel free to browse these pages, which we will try to keep as up-to-date as possible, and if you would like to share your experience please contact us.